What to do when your sick special child is so irritable C

What to do when your Sick Special Child is so Irritable

About two months ago, I took care of my special needs niece, Alyanna for around six hours. Her dad went to work and her mom went somewhere else with her friend.

I also watched over her two siblings aged 12 and 10 and my other nephew who’s also 10. They are older kids so they played on their own, I just reminded them to eat lunch and helped them decide what to eat and prepared their food on the table.

This is the first time that I took care of her for this long while she was sick and it was a real struggle for me. Along the way, I found a real solution, thus read on to learn what to do when your sick special child is so irritable.

In normal instances, Alyanna who is seven, with Cornelia de Lange Syndrome, but still non-verbal is not too hard to take care of. She usually has a good appetite and when she’s full, I can just put her down and she can play by herself or I can lie down with her in the bed while she watches Nursery rhymes in my cellphone.

But not that day.

She was sick with cough and colds ( fever was gone ) for the past 8 days, been brought to the emergency three times ( the last two for blood work ) and was still so irritable and would prefer to be carried in my arms.

And she was so heavy that my back really complained. I’m not so young anymore and have chronic back pains, so this was quite a problem and added burden for me.

What to do when your sick special child is irritable

 

Read more about Alyanna and her parents here:

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Non-verbal and Irritable

Because Alyanna cannot express herself, I didn’t know if there’s something hurting her or what was the reason why she felt so uncomfortable.

She just wanted to be carried but still kept on moving especially if I sat down. Thus, I had to put her down and she walked and moved around the house but still groaning, like complaining.

She had the tendency to pick up things and threw them away so I cannot let her walk around for long and I was also afraid she might trip on something and fall.

Poor sleep

For all those six hours or so that we were together, she looked so sleepy and would always close her eyes, but was able to sleep continuously for about half an hour only. I carried her and when I sat down, she would wake up.

I would let her lie down in her bed or the sofa but she didn’t like it.

In between all these I tried to feed her and she would oblige and open her mouth in spite of her closing her eyes and wanting to sleep.

Rocking chair

They have this rocking chair in the corner of their living room. This was my saving grace. I sat on it several times when I felt my hurting back gave way to her heaviness.

Rocking chair to calm your sick special child

And then she fell asleep but only for half an hour. In my shoulders, while we were rocking on the chair.

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For you special needs parents, or even parents of normal babies, a rocking chair like this is so helpful when your child is sick or just when you feel they’re getting heavier to carry for a while.

I remember when my son was a baby, we also had a rocking chair that my mother-in-law lent to us, and it was really helpful especially when he got sick.

Or just sitting down with him in my lap when he was well.

I think the rocking motion would calm him and all babies for that matter. It promotes a restful sleep for them eventually.

Why is this so?

Rocking mimics the movement that a baby felt when he was still in his mother’s womb.

Other tips on caring for your special sick child

  • Some screen time can help. If your special child feels comfy watching Nursery rhymes or any kids’ shows, by all means let them indulge, but with time limits. This way, they will be entertained and would forget whatever discomfort they feel at the moment.
  • Keep them hydrated. Give lots of water, juices, soup or milk. Especially if they cry a lot, or don’t have good appetite, the fluids will keep them going. Or if they have diarrhea and vomiting, give them more fluids with electrolytes.
  • Give medications on time. Drugs for fever, antibiotics or other prescribed medications need to be given on time for them to maximize their effectivity.
  • Allow them lots of rest and sleep. They will recover easily if you allow their body to recuperate. Thus, screen time is limited to thirty minutes or at most, one hour.Rocking your sick special child
  • Bring your child to the doctor or the emergency if he looks weak and really sick with fast breathing and with fever. Kids have weak immunity so they get serious fast.
  • Give them food all the time. Even with poor appetite, as long as they don’t have sore throat, they will be able to eat. Try to give small frequent feedings so they can still be given those nutrients that they need.
  • Keep them comfortable. Cover them with blankets to keep them warm.
  • Dress them up with light, comfortable clothes.
  • Keep them fresh with warm bath or rub them with wet towelettes and change with clean clothes before going to bed or when necessary.
  • Offer lots of fruits especially oranges or kiwi, because they are rich in Vitamin C and banana especially with poor appetite because it is easy to chew and will provide them with energy.

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When to bring your child to Emergency or to his Pediatrician

  • Looks very weak- even unable to walk properly
  • Unable to sleep
  • Not eating at all or drinking enough fluids
  • Fast breathing and shortness of breath
  • Very irritable
  • High fever- sometimes with chills
  • Persistent diarrhea and vomiting
  • Having seizures
  • Very pale or with bluish lips and nail beds
  • With very dry lips and sunken eyeballs
  • Rashes all over
  • Extreme drowsiness or difficulty to stay awake
  • Green or yellowish mucus from the nose or with difficult frequent cough
  • Holds her head or neck as if it hurts
  • Sick for more than 3 days
  • Unable to take oral medications like Paracetamol for fever, either refuses it or vomits after ingestion.

Remember your child is playful and eats well with good sleep if he is not sick.

Don’t wait until he is too sick before you bring him to the doctor or the emergency room.

You never know what illness your special child is suffering from.

Because they are non-verbal, they cannot tell you how they feel. Your observation is really important. As the parent who is there 24/7 to monitor your child, you know that he is not normal and suffering from something.

What to do when your sick special child is so irritable

Pangga’s Illness

I remember my sister, Pangga who had Down syndrome ( and for whom this website is dedicated ). She started to have poor appetite for a few days and later on she became slightly febrile and was noticed by my cousin who is a nurse to have fast breathing.

Although Pangga was verbal, she did not know how to communicate what she felt and never complained, she was just there in her bed lying all day and ate very little.

The doctor who saw her at home treated her with IV antibiotics for urinary tract infection. Later on, she was brought to the hospital because her tummy was noted to be increasing in size and did not pee for certain hours.

Eventually, Pangga was diagnosed to have severe abdominal infection due to ruptured appendicitis, had surgery but succumbed to generalized body infection and pneumonia a few days after surgery.

Too sad, but we just had to accept that it was all GOD’s plan.

How to Prevent Your Special Child from getting Sick

It is so important for your special child to be always up and about, without any illness.

Of course, we cannot 100{2bf5a58e48767fbe486a6d7f60c3395abda88dead4e8a5f04c811f9c46835bad} prevent any illness, but at least if we can minimize it or if he gets sick, for just a few days would be okay and he just stays at home, the better.

So, what are the ways on how to prevent him from getting sick?

1. Update his immunization. Although they cannot prevent the occurrence of illness 100{2bf5a58e48767fbe486a6d7f60c3395abda88dead4e8a5f04c811f9c46835bad}, when they are immunized and get sick, it will be mild only and will be well in a short period. Complications are minimized as well.

2. Give him nutritious food all the time. More fruits and vegetables if possible. Avoid too many sweets, salty and oily food.

3. Let him have adequate rest and sleep for at least 8-10 hours a day, Let him sleep early at night.

4. Let him drink lots of fluids like water and juices ( limited sugar ).

5. Don’t expose him to the crowd too much. Avoid public places for a long time.

6. Avoid too much exposure to sick people.

7. Some kids need vitamin C and multivitamins, especially if they are picky eaters to boost their immune system.

8. Wash their hands before and after eating and after letting them pee or poop.

Have a Rocking Chair at Home!

There you go, grab a ROCKING CHAIR here so you know what to do when your sick special child is so irritable.

Rocking chair

Always remember your sick special child will feel calm and comfortable sitting on your lap with you in a rocking chair and sleep most of the time because he will feel that he is still in your womb.

When was the last time that your special child got sick and wouldn’t want to be laid down in bed? What did you do?

Have you tried a rocking chair?

Please like and share

18 thoughts on “What to do when your Sick Special Child is so Irritable”

  1. What an insightful and inspiring article, thank you so much for posting it! 

    I have worked with special needs children before and this article really helps in terms of understanding why they behave the way they do and how to calm them down. 

    It can be a very challenging job but one that is also very rewarding.

    Reply
    • Hi Afonso,

      Caring for our special needs kids especially when they are sick is quite a challenge but as you say, very rewarding.

      When they are well, they are so huggable and easy to take care of.

      Understanding and accepting their inadequacies are vital to how parents and caregivers deal with them.

      God bless,

      Marita

      Reply
  2. Hello there! 

    I commend you for not giving up on Alyanna, you’re the best! 

    Also I’d like to contribute on how you can care for a special sick child. Dressing the child in lightweight, breathable clothes. 

    Likewise, making sure they rest a lot and drink plenty of fluids (such as water, juice, and Popsicles). 

    Thanks!

    Reply
    • I’m like a mother to my niece, Alyanna. She is so adorable when she feels well.

      Yes, proper clothing for comfort is important, as well as lots of rest and fluids.

      Glad you passed by.

      Cheers,

      Marita

      Reply
  3. Taking care of children is a tedious job talking of a special needs child. I think a special manual is needed to understand what it takes to care for a special needs child when they are sick. 

    My younger sister has a special needs son and she is having headaches caring for the boy but thank God the child is doing better by the day. 

    The points you have outlined in this article are very important to note. I would make sure she reads this and learn some important lessons from this article. 

    Reply
    • Our special needs parents have lots of patience just taking care of their special needs kids. And if their child gets sick, their patience extends all the more.

      Your sister is one of them and I deeply honor her and all the special needs parents. 

      I’m afraid there’s no manual to follow specific rules on taking care of our special kids when they get sick. 

      Every special child is different and only a parent really knows his child.

      Thanks for reading.

      Marita

      Reply
  4. Not surprising for a pediatrician like you to come up with an article like this – very detailed and full of practical tips. Alyanna is our adorable niece who deserves all the best in this world along with other kids who are special like her.

    I enjoyed reading and hopefully other families and caregivers could benefit from this great article.

    Good luck!

    Odette S.

    Reply
  5. Thank you for this incredibly informative article! 

    I am sorry to hear about what happened with your sister, but I do feel, as you said, that God has a plan for everything. 

    Maybe part of that is you having this website to help others with special needs children be ready for the daily challenges that come. 

    Thank you for being such an encouragement and source of information!

    Reply
    • Hi Steve,

      Thanks for your concern for the passing of my sister. Right, this website is built to honor her and dedicated to all special kids and their families and all those who support them.

      God bless,

      Marita

      Reply
  6. First of all, many thanks to you for giving us such a wonderful article.

    I have a sick special child and as a result of facing this situation I realized how difficult it is and I am currently dealing with a sick special child. 

    So I think your article will be very useful to me and I can understand the symptoms and how to take care of a special baby.

    And for me there are many benefits to understanding why they behave and how to calm them down. You certainly deserve your praise for this great article.

    Your article is truly a very inspiring article. 

    And it’s a very challenging job for me, but I hope that by following the tips you give, I will be successful and take care of my special child.

    Can I share your article on my social media?

    Reply
    • Hi Shanta,

      I honor you and truly appreciate your dedication to your special child. How old is he now?

      Of course, with your patience and unconditional love, I hope your sick special child will be well soon.

      Have you brought him to the doctor?

      Sure, you can share this post to your social media. The more people read it, the more that it will help them, especially our special needs parents like you.

      God bless,

      Marita

      Reply
  7. It is so true, that caring for a sick child can be challenging to say the least, especially if they are unable to effectively communicate to you what is wrong with them, or how they are feeling. 

    You gave some really good points and suggestions on what to look out for in order to make the tough decision of taking your child to the emergency room, as well as preventive measures that could be taken to help keep the child healthy. 

    It shows that you have a big heart for caring for children, and I’m sure you are a huge blessing to anyone you help with your pediatric knowledge and wisdom. 

    Thank you for sharing your knowledge to help others!

    Reply
    • Hi Brandy,

      Special kids really deserve utmost care and attention especially when they are sick. True, it’s challenging for their parents and caregivers if they are non-verbal.

      Thanks for the appreciation!

      God bless,

      Marita

      Reply
  8. Hello,
    This is a very helpful article I am saving this for future reference.

    It’s nice to read articles such as this, most importantly coming from a very reliable person who really knows how it’s like to have a child with special needs.

    Thank you very much.

    Reply
  9. With regard to the ways of preventing your special child from getting sick, I’d like to ask something that I noticed is not listed here or not included in the list here. 

    I have tried myself that coffee containing herbs that are known to boost our immune system is helping in preventing normal people from getting sick. Just one sachet of a herbal coffee containing Ganoderma mushroom have been proven to boost my immune system and get rid of the flu. 

    But I wonder if such product can also be used in boosting the immunity of our special child or can it be used together with Vitamin C?

    Reply
    • Hi Gomer,

      I believe coffee is not healthy for kids including our special kids. If they are grown ups maybe, we could offer them this coffee containing herbs as what you’re using. Just be sure that they are of age already.

      Thanks for reading.

      Marita

      Reply

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