Luxury on Mother’s day….our Special Needs Moms deserve it

From Down syndrome to Autism
Read Nathan’s family’s full stories in this free e-book. Click the image.

Oh, Mother’s day! This year because of COVID-19 pandemic, our celebrations were different. Your family may just have ordered food instead of dining in a restaurant or your loved ones may just have cooked something special to share with everyone. No extraordinary luxury on Mother’s day this year. Whatever and however you celebrated, it was to honor the mothers in our families, and special mention goes to our special needs moms who twice or thrice deserve the cheers.

I was in isolation at home for the few days before the occasion because I had symptoms of the Corona infection, luckily my test was negative. We had no celebration at home, but my daughter surprised me with a special drink and a small gift when she woke up. Later in the day, we attended the online mass.

The night before, my siblings and I had a video call with my parents and we happily chatted with my mom and my sister who are miles away and greeted them. 

Here at Pangga ta Ikaw, we would like to honor five special needs moms on their big day, Mother’s day. This post maybe late for the actual Mother’s Day but I believe the whole month of May is dedicated to all mothers out there who wholeheartedly give themselves to their families. Of course our special needs moms deserve special mention.

We know that they have done a lot and are still doing great things for their families and of course for their special child. They are very patient and very loving and ” giving unconditional love, ” is their mantra.

Read on their stories on how their special kids, despite challenges in raising them,  make their families extra joyful and blessed.

This post may contain affiliate links. Please read my Affiliate disclosure for more information.

 

Emerald with Hailey

Down syndrome baby and mom

Our first mom, Emerald was 36 when she had Hailey, her daughter with Down syndrome, who is now three and 10 months.

She has 2 other daughters who are older than Hailey.

As an elementary school teacher, her days are always full and busy. But her family is her priority.

Related post:

Raising a child with Down syndrome-our baby is our happy pill

Raising a child with Down syndrome-( Hailey is now three! )

What is your biggest challenge in raising Hailey?

” It is how to keep her healthy because simple colds can lead to something serious.”

How do you cope with Hailey’s inadequacies or incapacities?

” I always try to be very patient and understanding of her and asks help from her older sisters, so I don’t get overwhelmed.

I appreciate all the little developments that she shows everyday. Like at her age now, she is able to express herself with simple words. “

How does Hailey make you and your family happy?

Luxury on Mother's day

” Hailey is a very happy child; she learned the word “love” and with that she extends her hand to hug and kiss.

It makes my day and gives me comfort even on a very tiring day.”

What do you do to celebrate Mother’s day?

” Since my husband is away, I celebrate this day with my daughters.

We usually eat out in one of the simple restaurants in our town, or if it’s a weekend, we go to the beach, which Hailey might be anxious to experience at first but eventually, she enjoys it.

This year because of COVID, we just stayed home and I prepared something special.”

How does Hailey affect your life as a mom?

” Having Hailey is one of the greatest things that happened to me and my family.

She makes our life more special with her unending expression of love..it’s like everyday is Mother’s Day.

Hailey makes me realize that though some people maybe lacking in terms of mental capacity or even physical skills but the ability to show affection can be expressed in so many ways.

Lastly, she makes me realize that we can be very happy even in small things and that’s what actually really matters. “

 

 

Diane with Nathan

 

Nate has Down syndrome and AutismAt 42 and after 11 years from having her first born daughter, Diane gave birth to Nathan, who was diagnosed with Down syndrome right after delivery.

It was not easy for her to accept the diagnosis but nevertheless, named his son Nathaniel, which means ” gift from  God.”

At around 2 years old, Nathan showed signs of autism and was diagnosed when he was three.

Nathan is now going 14 and although can say some very few words, basically he is non-verbal.

Diane works part time as a bedside nurse and with her husband, takes turns in taking care of Nathan.

What is your biggest challenge in raising Nathan?

”  At around 2-3 years old, after Nathan got the very first and last flu shot, he got sick for about a week with slight fever. Then we noticed that he stopped talking.

I was really hesitant for him to get this shot but his doctor encouraged us, so I firmly believe until now that this caused him to lose all his words.

I got so upset and angry with the doctor and called the clinic right away to inform them.

Eventually he showed signs of autism, until at 6 years old, he was given another booster of vaccines, that I believed made his autism worse.

Nowadays, our greatest struggles with him is cutting his nails every week and his hair every few months. No hair dresser would like to trim his hair because he flails his arms around and kicks a lot.

He is getting stronger each day and his dad needs to hold him tight because he fights with all his might. “

How do you cope with Nathan’s inadequacies or incapacities?

” Together with my husband, who is also a nurse, and my daughter, who loves his brother a lot, we take turns in caring for Nathan.

Related post: Big sister, little brother… he has Down syndrome and autism !

Until now, it’s still hard for me to see him not able to associate properly with kids his age.

We just take each day’s struggles as challenges that eventually and hopefully will make Nathan better especially in his speech and self-care later in his life.”

How does Nate make you and your family happy?

Nathan has Down syndrome and autism

” Although Nate is basically non-verbal, he can say a few words like stop, done, outside, go away, bye, and please. This makes us happy that at least he can express himself in his own simple way.

Nate is also a very neat and organized kid. He loves to shower every night, loves to brush his teeth morning and night time , all with assistance and no tantrums.

 He’s a little bit responsible of his personal belongings like every time he comes home from school or outside, he puts away his shoes by himself. When he takes off his clothes, he puts them in the hamper. When he is done with his snacks and drinks, he puts the dishes in the counter.

Nathan makes us smile too when he goes to the mirror and tries to act out anything. He is amused himself doing this, as well. Maybe he is an actor in the making, who knows? “

What do you do to celebrate Mother’s day?

” If I’m not working, we usually eat out in a restaurant after attending mass. This year because of the pandemic, we had celebrations with my husband’s extended family in the house of his niece. 

Ever since Nathan attended school, he brings home a Mother’s day card or a small pot of plant from school. This makes my day! “

How does Nate affect your life as a mom?

” I may have accepted my son as special, but there are lots of times that I feel sorry for him especially if I see our family friends’ kids of his age and they can already do things and here is Nathan, still unable to read and write.

There’s 5 boys of them that’s almost Nathan’s age and he can’t just socialize with them. Nathan would just sit in the sofa watching them or watching television, but he’s happy though to see them running around the house playing. “

Related post: Down Syndrome with Autism- My Son has both and he is a gift from God!

Lee with MarkLuxury on Mother's day

At 42, Lee gave birth to her youngest and only boy, Mark, also a Down syndrome kid.

He is now 11, but is still non-verbal. Mark has 3 older sisters.

Lee is a full time government employee and juggles her time with family and work, which sometimes call her on weekends.

Related post: A mother’s unconditional love… it is for real

What is your biggest challenge in raising Mark?

” Starting Mark on solid food is really a struggle. He cannot properly swallow solid food, so we have to prepare them always in a blender. 

Growing up, Mark relied mostly on milk and he had frequent diarrhea, thus he would be confined to the hospital a lot of times.

Until now, his food is still processed in a blender and being given to him by me or his dad or nanny. He still cannot feed himself.

Mark is only partially toilet-trained as well, so still needs lots of assistance. “

How do you cope with Mark’s inadequacies or incapacities?

” I  have ever since accepted Mark for what he is and although taking care of him is challenging, I have lots of support in my husband, my daughters and his nanny.

Patience, understanding, and acceptance of what he can do everyday keeps me grounded. I don’t expect anything but just appreciate what he is and what he can do.

I still believe that eventually he will be able to talk and will be able to be toilet-trained.

When? In due time. “

How does Mark make you and your family happy?

Lee and Mark with family

” Mark is easy to take care of, he is able to follow simple instructions, like taking the hand of his grandparents or us his parents or other elders to his forehead as a sign that he is asking for God’s blessings.

He has no tantrums and just loves watching TV at home.

Although he cannot express himself, his mere presence in our lives with his innocence make us realize that life can be as simple with just the basic needs and still be happy.”

What do you do to celebrate Mother’s day?

” Usually, we prepare some food and celebrate with my family and my parents. Nothing extravagant, but just getting together as a family. This year, my sister abroad gave me and my mom a special cake for the occasion and it added to the festive ambiance of the small lunch that I prepared for my family and my parents and brother.

This day makes me realize how challenging it is being a mom especially since I have a special child. “

How does Mark affect your life as a mom?

” Mark is a blessing to our family. He may have made my life busier and more challenging, but at the end of the day, taking care of him is a joy and source of satisfaction.

He may be delayed in his development but because of that, I always feel that having a ” baby” ( Mark ) in our midst keep me humble and full of simple joy. “

 

Mylene with Alyanna

Alyanna and mom

After 2 kids , Mylene at 38 had Alyanna, who was diagnosed later to have Cornelia de Lange syndrome.

Now 7 years old, Alyanna is still non-verbal but has learned to walk on her own and has started school. She is now in grade one and doing online school due to the pandemic.

Mylene, who is working part-time at a senior’s home, has always a full plate with three young kids, including a special one.

What is your biggest challenge in raising Alyanna?

” Starting from Alyanna’s diagnosis, I have accepted that she has delayed physical and mental development. Having studied nursing, it was not so hard for me to take care of her.

Until at almost 3 years old, we were advised to submit Alyanna to have open heart surgery for a hole in her heart which was noted when she was more than a year old. The doctor had to observe for a few months to see if it would close spontaneously.

We had to fly all the way to another city where the heart surgeon was. We stayed in the hospital for 5 days after surgery ( including 2 days in intensive care unit ).

My husband and I were quite stressed during that time because we did not know the outcome and thinking that she is so young , so small and so frail, we were not sure if Alyanna would recover fully and come out safe after the surgery.

Thank God we were able to get out of hospital with her then already smiling, eating apple sauce and yoghurt, and on the road to recovery.”

How do you cope with Alyanna’s inadequacies or incapacities?

” I’m so thankful for the support of my family-my husband is hands on giving food to Alyanna and taking care of her during his off days from work. Even my daughter who is almost 11 can take care of her, as well. And her older brother can now pitch in  when I’m busy or at work.

I can also count for help with my two other sisters and my mother-in-law when she was with us on vacation last year.

So, family support does the trick for me.”

How does Alyanna make you and your family happy?

Luxury on mother's day

” Alyanna smiles a lot, she giggles, too especially when her sister tickles her.

When I arrive home from work, she lets me feel that she misses me by hugging and kissing me when I get to hold her.

Her mere presence in our lives is a blessing and we appreciate every little thing that she can do.

Lately, she enjoys walking back and forth around the house. She’s like telling us, ” See, I am independent and can take care of myself. 

She has improved a lot in the two years that she has attended school. Alyanna is more attentive and more sociable now. “

What do you do to celebrate Mother’s day?

” It’s usually an extended family celebration, either at home or someone else’s home or at the park. It’s always a potluck thing where every family brings their specialty.  It’s all about food, stories, games, singing, and laughter.

This year though we just stayed home because we need social distancing so we won’t get infected with the Corona virus. I just prepared something special for my family.

My 2 older kids who are in the elementary and even Alyanna who is in SPED, gives me special crafts on this day and they validate my job as their special mom. “

How does Alyanna affect your life as a mom?

” With Alyanna around, life is always happy. Whose heart would not leap as she giggles and laughs when tickled or even for no reason at all?

I know she is God’s gift to us, who will always keep us grounded and humble.

Alyanna is our reality check.”

 

Berling with Pangga

My mama Berling, who had a small retail business, has 10 kids. Pangga, my sister with Down syndrome, is the sixth child and she had her when she was 29 years old.

Pangga had Down syndrome

Related post:

Down syndrome-signs and life expectancy

My mom married at a very young age, did you figure that out?

Having 10 kids is also something. I only have one and he is a handful.

I really appreciated my mom when I got married and had my own child.

Mama is now 81 years old, somewhat frail with health concerns and some memory problems.

Even if I wanted to interview her, she wouldn’t be able to remember details, so I’ll just relate to you some observations on how she raised Pangga with all her big family plus being a full time self-employed retailer. I also learned some facts based on her stories when she was younger.

My mom breastfed all of us and had every baby home-delivered by a traditional midwife. She would also need the assistance of that traditional midwife to take care of her babies like bathing them, until maybe two months old.

She was a really hardworking and responsible parent. She did not go to any business school, but because of determination and hard work, she was able to contribute enough for the family’s finances. My dad worked full time as a government employee with just the basic salary.

Jill of all trades

Luxury on Mother's day

In one of our family reunions, we gave her the award, ” Jill of all trades ,” ( from Jack and Jill ) because she was into several pursuits when she was raising her family.

When we were younger, she learned how to sew anything from ladies’ brassieres to girls’ dresses and hair accessories and she would sell these items in a makeshift store in local communities during special occasions in any town in the province where we lived.

She would also accept dressmaking orders from clients. Aside from having a retail store at home, I remember at one time she had two stores in different locations. She repacked household food items like sugar and spices that she sold on her store.

Growing up, we kids would reluctantly help her with these. I guess kids are always like this, lol!

My mom always had paid help in her businesses and around our home. In fact, we grew up with different nannies every few months or years, except for one who really stayed with us for a long time until she got married and even came back when her kids were grown up.

Aside from the retail stores, my mom was good at cooking any food that she sells, like snack items or dessert which were made from scratch.

She was the most persistent businesswoman I know. We kids definitely learned how to be responsible from her because we would always be asked to assist her in all these endeavors.

So, with all her busy business life, you may ask:

How did she raise us, ten kids with 2 special ones?

Mother's day honors the light in the family-our moms!
All ten kids joyfully celebrated our parents’ Golden wedding anniversary.

Of course, as I mentioned awhile back, we always had nannies to help. My younger brother who has mental retardation stayed at home and was trained to take care of himself and to help around the house.

Pangga, on the other hand, who really developed late, physically and mentally, stayed with my mom’s aunt in another town and would come to visit us every few months, until she stayed with us in her later years leading to her death.

All of us siblings were also trained to pitch in with the household chores and in her stores, so everybody helps. The older siblings would be baby sitters with the younger ones, as we were growing up. Since I am the oldest daughter, I was usually tasked to be like the mom when Mama was away or busy in her stores.

Generosity as a family trait

Aside from being a very responsible mom, she was also very generous with her siblings and other people around her. She and my dad , when we were still young, provided for the school expenses of one of her sisters, a trait which we copied with our own siblings down the line.

Being a big family, whose parents are medium income earners, who would have imagined that we all could successfully finish university, except for the 2 special ones?

It all started with an all out financial help for our studies, for me and my older brother, from one of my mom’s sisters who worked as a nurse abroad. I believe she got this benevolent trait from my mom, as well.

This then started the tradition in our family of sending to school our younger siblings and the next in line, until everybody graduated.

My mom was and still is a strong cohesive force in our family.

Luxury on Mother's day

Celebrating Mother’s day

We may not have celebrated Mother’s day big time when we were younger, but now that we have our own families, we realize that our ” Mama Berling,” has been a source of inspiration for all of us for being so resourceful, responsible and caring.

Since most of us now live abroad, we try our best to call her on this special day and hand out some cash gifts to make her smile.

This year, I requested my sister to buy a Mother’s day cake for Mama and for her as well. My sister’s family and my parents with my other special brother had a small celebration at home and with us kids video-calling her that day meant a lot to her and to us.

Luxury on Mother's day

A big hole in her heart

Pangga had Down syndrome

When Pangga passed away, being the first in our family to leave us, my mom got so depressed for a few months. She couldn’t sleep and eat and felt so useless.

We, the kids have come to the rescue to fill the void in her heart!

We made a schedule so that almost daily, she received a call ( most of us are based abroad ) from us kids and her grandchildren, to cheer her up and to make her feel that we are here for her and we still need her.

Of course we prayed a lot, as well.

Thank GOD she eventually recovered and now, even if she is getting frail and not as active and productive at home, she and my dad and my special brother enjoyed tending a vegetable garden at a place where she feels she is useful and happy. Until this pandemic and my dad getting sick as well, so they have not been doing it for awhile.

This is quite an expensive hobby; selling the produce from the garden is way less than the amount that they spend on fares to go back and forth and the salary that she gives to the workers, but who cares?

Mama’s garden

Although they have not been active attending to her garden for awhile, I might as well share with you what makes her happy the most and hopefully after the pandemic, they can go back to this place.

This is her happy place and this is what makes her wake up early in the morning, rather than sleep in and wake up at noontime to go back to sleep again after a few hours.

Keeping her busy in the garden, even just overseeing her workers, make her days feel full and productive.

Happy Mother’s day,Ma! We love you!

Mama's garden

 

Extraordinary supermoms

I’m sure you would all agree that as moms of special kids, they are also “special” in their own right.

Special and extraordinary.

Taking care of normal kids is itself challenging, how much more with special kids?

Not only double or triple hard and more challenging, and if the kid has some health problems as well, it adds to the burden.

But mind you, these moms, have all what it takes to be super moms and they all deserve luxury on Mother’s day, right?

From Pangga ta Ikaw, we wish Emerald, Diane, Lee, Mylene, and Mama Berling and all the special needs moms out there a joyful, blessed ” Happy Mother’s day! ” Belated for now.

We  truly appreciate what you do for your special kids and your whole family.

May your tribe increase!

Luxury on Mother's day

 

 How did you celebrate Mother’s day this year with the COVID-19 pandemic?

Originally published: May 8, 2019       Updated: May 13, 2020

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18 thoughts on “Luxury on Mother’s day….our Special Needs Moms deserve it”

  1. Hello Marita, 

    This is a really wonderful post. It is really great because it is mothers day. 

    Honoring those women was such a beautiful thing to do, they deserve it and more.

    I am going to share this post with my mother and her friends so they can feel loved too. 

    Thank you Marita.

    Reply
    • Hi Philebur,

      Our mothers do deserve honoring not only on Mother’s day but everyday.

      Thanks for reading.

      Cheers,

      Marita

      Reply
  2. Nice review I must say, it’s imperative to know that a mother’s love changes in different seasons. 

    The love of a mother turns her attention to her little ones and away from former hobbies, interests, and pursuits that are too costly and self-focused. 

    The love of a mother makes time to pour into herself, knowing it’s the best thing she can do for her family.

    With all said and done, I really hope you have your mom the best treat she deserves as we did celebrate our mothers day…

    Reply
    • Hi Evans,

      That’s true, mothers prioritize their kids more than anything else. She puts aside her own interests so she can focus on the needs of their kids. This is more challenging for special needs moms and we so honor them for doing their best for their special kids who have more needs than the regular kids.

      My mom lives far away from us, so my siblings and I had a videocall with her and my dad and my sister’s family and my brother, on Mother’s day. They had a small celebration and I bought a cake for her and my sister, which added to their joy.

      Cheers,

      Marita

      Reply
  3. Wow! This is an amazing article that you have got here. Their stories are inspiring and informative. Indeed Mothers have done a lot when it come to the family. I can’t agree less with you, its never too late to celebrate them. Mother’s are caring, loving and enduring. It only makes more sense when we celebrate them in return for their deeds.

    Thanks for sharing. I love my mum.

    Reply
    • Thanks for the nice words about our moms. They always do their jobs of taking good care of their families and it’s a double or triple honor for our special needs moms.

      God bless,

      Marita

      Reply
  4. What a beautiful expression of love to share how mothers with special needs children adapt, cope and love their children no matter what.

    As I read each story, I thought of how much these families not only sacrifice, but also grow through the special children in their lives.

    I worked at a day facility for adults with special needs for a time and I loved it. I was scared at first, but when I realized how special and awesome these people were, that fear went away!  I loved these folks so much I even went to work at their homes and did respite care, too.

    I wish more people had the opportunity to love these special people!

    As special as those with special needs are, I think their parents and families are super special, too!

    Reply
    • Hi Karin,

      Thanks for appreciating our special needs moms and their families. Also, sharing your experience working with adults with special needs. I feel you, it’s quite scary at first but eventually the warmth and innocence of these people will grow into you.

      How our special kids develop mentally and socially really starts at home. With parents especially moms who are so loving and caring, they eventually develop to become happier and more loving.

      God bless,

      Marita

      Reply
  5. They are supermoms in the truest sense of the word! All of them are very strong women who could handle well the many challenges that comes with raising special kids.

    I’m so proud of what they do because not everyone can be like them. It would take great courage, understanding and love more than anyone would know to take care of them.

    Thanks for this very inspiring article. Looking forward for more insightful reads in the future.

    More power!

    Odette

    Reply
    • Hi Odette,

      They truly are amazing supermoms!
      I for one raised only one normal child and it has been a challenge, thus I really appreciate my mom all the more and all the other special needs moms out there.

      Thanks for reading.
      Please come back for future posts.

      God bless,
      Marita

      Reply
  6. I really appreciate being featured in this article and sharing our story to the readers. Truly, our children are gifts from God who make Mother’s Day extra special despite the challenges we encounter in taking care of our special children.
    I admire your Mom and the people who showed their love and support in raising your two other siblings with special needs,they make life a bit more easy. A “Me”time is very important to relax a bit when we are feeling tired and exhausted.
    Looking forward to more interesting and helpful articles.

    Reply
    • Hi Emerald,

      It is my great honor to feature you, my sisters and my mom in this very memorable blog about special needs moms. It’s very timely for Mother’s day.
      I found great inspiration in making this, thanks a lot for allowing our readers to learn your journey in raising Hailey and your other daughters.
      You’re right, a “me” time is really important and healthy for you to continue to be there for your kids.
      Keep on coming back here and I promise I will write some more relevant posts.

      God bless,
      Marita

      Reply
  7. Hmmm. This is touching to me. 

    Some of these women gave birth to their kids at 30+ years and having to face such compulsory “tasks” daily coupled with the natural mid life crisis as they call it,  can be a lot to have served in one plate daily.

    It’s beautiful how they manage to keep a handle on the situation. It can be very overwhelming, at least Emerald’s statement can prove that to us.

    I pray they find strength and reasons to be always happy and  with subsequent mother’s day celebrations. 

    Reply
    • Special needs moms are “supermoms,” they can do anything for their kids and their families.

      Thanks for your appreciation and for your prayers.

      God bless,

      Marita

      Reply
  8. Hi Marita.

    Your post is really great because it is about mother’s day. 

    You have honored five special needs moms on this great day here in Pangga ta Ikaw. They are all awesome!

    I am thinking to let my mom read your posts here in  Pangga ta Ikaw on mother’s day. I like your idea very much. 

    I will share your post with all my friends, too. 

    Thank you so much for such a lovely post.

    Reply
    • Hi Monalisha,

      Glad that you found some gems in my post and my website.

      Thanks for planning to share them to your mom and friends.

      Happy mother’s day to your mom as well.

      Marita

      Reply
  9. What a precious article.  I loved reading it. 

    You know, when I was pregnant with my first set of twins (yes, I had two sets), my doctor said he could do a check to see if either of my children had Down Syndrome.  

    I said, “Oh, so if they do, what can be done?”  He said, “nothing.”  I said, “Well, then why would I do such a risky procedure then?” (He had told me it could cause me to miscarry from the procedure).  

    He said, “So you can decide what to do?”  

    Wow, I was just floored and pretty upset.  I said, “God gave me these children, and however they are, I will love them unconditionally!  There is no decision here, except in God’s hands.” 

    Anyway, my children did not have any problems, but I would have loved them as much as these families love their children.  

    They are gifts from God!  Thank you for an uplifting and beautiful article.

    Reply
    • Hi Babsie,

      I honor you for loving your kids unconditionally, starting from when they were still in your womb.

      Two sets of twins? You had busy days, for sure.

      You are a supermom, as well.

      Happy mother’s day!

      God bless,

      Marita

      Reply

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