Big sister, little brother…..he has Down syndrome and autism!

Big sister, little brother

 

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She was the apple of her parents’ eyes for a long time until her brother came along.

Growing up with working parents, Joanne became a bookworm and would just soak in books instead of playing by herself while waiting for her mom to wake up after a restful sleep from night duty.

Due to her love for reading, school became a means for her to excel.

Being an only child back then with no constant playmates, she longed for a brother or a sister.

And then, Nathan came along.

Since then, her brother has become her playmate and source of joy for the longest time.

Now that Joanne is finished with university and far from home, she always looks forward to returning home on vacations, even during short breaks, because she knows that they can be the ” big sister, little brother ” team and they could bond to the max during  that time.

Tell us about yourself.

” My name is Joanne and I have one special brother named Nathan.

Currently, I am a student and see my brother only when I go home for holidays. In my free time, I enjoy reading and watching YouTube videos.

I hope to become a Pediatrician and maybe specialize in Genetics so I can work with kids like my brother, who has both autism and Down syndrome.”

How old were you when Nathan was born and how did you know that he was special?

” Nathan was born when I was 11 years old. I knew that he had Down syndrome before he was born and my parents knew that there was a big chance of him being born with Downs due to both my mom’s age and her sister having Down syndrome, as well.

However, it wasn’t apparent that he had autism until he was around 2 years old. This was around the time when he lost all the words he knew and started developing stimming behaviors. For example, he loved rocking in a recliner we had and would flap his hands. “
Describe Nathan and tell us about his development.

Little brother has Down syndrome” Sometimes Nathan is very loving and other times he can be aggressive. It just depends on the day and how outside factors are affecting him.

I would ask him for a kiss or a hug and would happily oblige, but other times, he would pull my hair.

He tends to misbehave the most when he gets asked to do something he doesn’t want to do at all. For example, if he gets asked to hand someone the remote for the television, he might get upset and would literally stomp upstairs.

However, even things like this we appreciate and are proud of because it shows his growth in personality. He used to not react at all.

Something we are very proud of is that Nate is a very neat person. He takes off his shoes and socks after coming home from school and places them where the shoes belong.

If he sees a cellphone on the table and he knows who it belongs to, he will make sure to hand that to the specific person.

Even if the pillows, the remote, or the house phone are out of place, he will make sure to put them where they belong.

This started a couple of years ago but he has been generally neat overall. “

How did you and your family react to the news that he was special?

” My family and I were very accepting of the fact that Nathan had Down syndrome. Again, my mom’s sister had Downs and I had visited her in the Philippines when I was younger. It was no surprise when Nathan was born.

In fact, I think it made us love him even more. “

Do you have any fears about Nathan’s future?

” Something that I feel scared of regarding Nate’s future is that people might not be as accepting of him once he is older.

Right now, at 12 years old, he can get away with almost anything because he is young enough and is cute. Once he is older, he will be expected to understand more, to be capable of more.

But what if he’s not? “

Does your family have specific plans for his future?

” Right now, there are no specific plans for Nathan’s future. We are just trying to help him grow and learn, then we will proceed from there.”

How did you and your family cope with the struggles on caring for him as he was growing up?

” My family had the normal struggles faced when taking care of a child, they just happened a lot later and for longer periods of time due to Nathan being slower mentally and physically.

But other than that, yes there were specific challenges related to him being him. He had to have a lot of therapies to get his abilities to where they are now and that takes time, money and sacrifices.

However, Nathan is easy to relate to. It’s easy to relate to the feeling of not being able to do something that others find simple and then feeling so frustrated. I believe everyone has been there at some point.

Even the difficulty of being able to communicate with others is relatable.

That’s an issue I’ve encountered. I can’t speak Filipino and I am not able to communicate with my grandmother. But just like Nathan, I can get what I want to say across.”

What therapies or supports did Nathan have until now?

” I know that he had occupational, physical, and speech therapy throughout his life. He used to get one-on-one with these when he was a baby.

I remember they used the blue exercise ball and would lay him on his tummy on it. I don’t know why though, maybe to learn how to crawl?

Currently, he is attending a special school for 4 hours every day where  they have music therapy as part of the program. “

Share with us how Nathan makes your family happy.

Big sister, little brother

 

” Nathan makes us happy with his interactions with the world around him.

He’s funny without realizing it. It just comes naturally, I guess.

I remember when my grandfather lived with us for a bit, Nathan would copy the way he walked with his hands behind his back.

Even when he says “No way,” to us we are happy because that’s
him communicating with us.

But my favorite is when he decides to show me his love out of nowhere. Sometimes he’ll pull me closer for a hug or a kiss or even just give me a smile. 

He’s able to convey how much he loves me with that smile.”

What activities do you enjoy most with your brother?

” Nathan and I enjoy going to the park together. He loves to go on the swings and feel the wind on his face.

We also enjoy watching YouTube videos together, he likes to watch them over my shoulder.

But our two favorite activities are taking naps and taking snaps. “

You said Nathan is non-verbal, so how do you know if he needs something?

” We share that sibling connection. Out of everyone in our family, I understand him the most.

Most times I just know what he is trying to say or I can anticipate what he needs before he is even able to ask for it.

Generally, since he doesn’t talk, he will grab someone’s hand and gesture it in the direction of what he wants. For example, if he finishes his dinner but wants more, he will grab my dad’s hand and drag it towards what he likes to eat more of.”

What advice can you give to siblings and parents  on how to take care of a special sibling or child.

” I know it’s hard at times but don’t forget that a lot of people out there are willing to help you: your family, your friends, even your local community.

Do your research into what events you can get your child into.

Don’t be afraid to talk to others at these events so that you can learn from their experiences and from their mistakes.”

Lastly, do you have any experiences with Nathan that’s worth sharing?

“Once we went to an aquarium in Atlanta, Georgia. There were some penguins there and I guess that they’re very playful.

 Nate was really young then. Maybe 4 years old? He was definitely in his stroller. He was looking to the side, watching some penguins on a little cliff.

One swam up from the opposite side and surprised him and he was so startled, he went, “AH!” It’s a fond memory that my whole family shares.”

 

Thank you, Joanne for sharing to everyone your wonderful and inspiring experiences and stories about your brother, Nathan.

I can definitely relate because your aunt who had Down syndrome is my sister, Pangga, whom this website is dedicated.

Truly Nathan and the other members of our extended family who are special bring us immense joy in our day to day life.

I am sure, as well as your parents know,  that Nathan is in good hands and you will take good care of him when we are not around anymore.

We are so proud and happy of your dedication to your brother.

 

How does your special child connect with his siblings? What are the activities that they enjoy together? Please share your experiences with us.

 

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Special needs homeschool….can my child learn?

As parents, we want our kids to learn the best that they can. We always seek for them the best schools, under the best teachers if we have choices.

We assist our children as much as we can with their homework and projects. We see to it that they hand in their assignments on time and they review their lessons way ahead of their scheduled examinations.

When they do good in school, we are the proudest of their achievements. We even buy something for them to celebrate their success.

The same goes for our children with special needs. As parents of our special kids, we always want for them to achieve the best that they can be.

It doesn’t matter if our special child is not able to talk at the age appropriate for him, as long as gradually he is able to communicate, that’s all that matters.

 

Special needs homeschool

We may have fears of our special child being bullied in school, or questions whether he will be able to adapt easily to his new teacher and new classmates plus the new surroundings.

So, at the back of our minds, we have this question:

A special needs home school…. can my child learn from me?

Is homeschooling the better option?

This is the question that most parents with special needs child will have to address.

Let us look at the pros and cons of homeschooling.

Benefits of a special needs home school

As parents, we always hope for the best outcome or learning potential for our special kid.

If you have the time and the resources to home school your child, it could be your best option for him.

These are some positive aspects for letting your child attend home school.

  • Specific needs will be addressed. You as the parent who is there for your child 24/7 truly understands what your special child needs, for example you will know what your child is struggling, maybe reading or verbalizing his needs.

 

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  • One-on-one attention will boost your child’s confidence more than ever and he will learn faster.

 

  • Avoiding many obstacles in a traditional classroom. Communication will be the biggest struggle in school, but with you around in the home school, he can always be open to verbalize his needs or put forward his concerns non- verbally if need be. Bullying would be an issue that can be avoided there as well.

 

  • Flexible time and schedule. A structured time and schedule is good, but there will be times that your child would need to move his schedule or you may need to do it yourself for whatever reason.

 

  • Observing up close your child’s progress and struggles. As the parent-teacher, you will see first-hand your child’s development or what area he needs to focus on.
  • Understanding your child’s inadequacies and coping mechanisms. Only a parent can accept unconditionally his child’s shortcomings.
  • Pacing of teaching can be adjusted depending on your child’s improvement. You don’t have to report to a principal or superior about why your child is still unable to read or identify colors at a certain time and explain why.
  • Comfortable surroundings for your child will let him learn more effectively. You can both be in your jammies and sitting in your bed reading together. He doesn’t need to go out in extreme cold if the weather is not so good.

Drawbacks of homeschooling

Of course attending a traditional school for your child would be the best option if need be, but it is not always possible, or you think making him attend home school is the best because you believe you can offer him the best education there is.

There are negative feedback of course, and would include the following:

  • Social skills will not be optimized. Since he is alone at home with you, he will not develop the best friendships and good communication skills.
  • Your child will test the limits of your patience. There might be a time that you might feel so frustrated if he learns so slow or forgets what he has learned and you feel that homeschooling in not fit for your special child.
  • You might feel inadequate for your child as a mentor having no teaching experiences in school, more so with a special kid.
  • Tantrums or meltdowns might happen many times that are hard to control and as a parent, may discourage you to stop the lessons for the day.
  • In the early stages or even before starting homeschooling especially if a special child has been previously enrolled in a public school, some school officials harass the parents and don’t allow the special child to dis-enroll because of fear of losing funding.
  • Special needs children may lose government-funded special child services such as speech therapy when home schooled.

How to improve your child’s skills as a home schooler

As the teacher for your special child, you can always plan on improving how you handle him. You don’t need to suggest to his teacher in the regular school what you think is the best way to offer him lessons.

  • Let your special child attend group activities like your church’s Sunday school or your neighborhood’s annual picnic to broaden his horizon and meet other kids.
  • Enroll him in extracurricular activities like piano lessons where he can interact with another teacher or other students if they will have recitals or concerts.
  • Let him stick to a routine as much as possible, like the same schedule each day for school, play, and homework. This will develop in him discipline and good study habits.
  • Daily habit of reading if he can, or reading to him if still not able on his own.
  • Encourage him to ask questions, thus enabling him to learn through exploration and discovery.
  • Give rewards for his achievements. There is no better way to encourage him to achieve more if he sees that you appreciate his efforts.

  • Encourage him to repeat works or projects that are not acceptable at first or second try. Let him feel that mistakes are okey as long as he tries again to correct them.
  • Discuss with him why he did not get good results or scores with certain exams or projects and encourage him to give suggestions on how he can overcome these.
  • Balance learning with fun. Introduce play as much as possible or activities that your child enjoys in your daily lessons.
  • Connect with other parent-teachers ( join home school groups ) so you could compare ways on how to optimize teaching to your child and he can meet new friends as well.
  • Be patient with your child’s progress and just be content of what he can achieve daily. Don’t expect too much.
  • Display his works at home such as in the fridge or a dedicated corner or show to family so he knows that you are proud of his achievements.

Legalities and requirements of homeschooling

While homeschooling is legal in all 50 states in the US and all provinces in Canada, there are different requirements of each state or province where you live.

Call the authorities or agencies in your place just to be sure that they will not go after you and you will be out of trouble.

Some places require home school parents to meet basic educational qualifications, like a high school diploma or GED or a teaching certificate, but most states in the US do not have this requirement.

For Canadian homeschooling, please visit your province’s Department of Education websites for specific requirements. Some provinces may require you to report to them periodically for your child’s achievements. Or you need to tell them before you start home schooling.

I have mentioned only US and Canada here as examples, but if you live somewhere else, this could also apply to you.

Parents excel in giving education to their special needs children

A year-long research was conducted by Dr Steven Duvall in eight elementary and two junior high students with learning disabilities, where five students were home schooled and five attended public schools.

He did this by seating-in on teaching sessions and observed every twenty seconds how the students used academically engaged time during instructional periods. He then encoded data in his laptop which were double-checked by a second observer.

Likewise, Dr Duvall measured the students’ scores in standardized achievement tests in reading, math and written language.

Look at the amazing results!

  • The home schooled special kids showed academic engagement two and a half times more than those enrolled in public schools.
  • The home schooled kids spent only 40.7 % of their time with no academic responses against 74.9 % for the kids in public schools.
  • The teachers and kids in home schools were sitting side -by-side or face-to-face 43% of the time compared to only 6% of the time for public schools. This gave more advantage for the home schooled kids.
  • The home schooled kids showed an average of six months improvement in reading compared to only half a month gain for special kids enrolled in public schools.
  • The home schooled kids showed an average of eight months improvement in written language skills compared to only 2.5 months in kids enrolled in public schools.

Dr. Duvall summarized, “These results clearly indicate that parents, even though they are not certified teachers, can create instructional environments at home that assist students with learning disabilities to improve their academic skills. This study clearly shows that homeschooling is beneficial for special-needs students.”

It is  a very positive and encouraging study, so my dear parents, take the opportunity to home school your kids if you can!

What parents say about homeschooling or home education:

Here are two parents who found homeschooling effective for their children with special needs.

JOYCE has this to say:

” My son was thrown out of a private mainstream nursery at the age of 4. What followed was his diagnosis of autism and my decision to home educate. I am lazy and chicken, decided I would rather provide him what he needs socially and educationally myself than spend my days beating my head against the doors of authorities to convince them to provide it. And all that otherwise frustrated time is instead spent enjoying my happy, unique
son.The result so far –

My husband and my family are now convinced that we made the right choice. My son is happy and excited about learning. It’s not all roses, he does balk at writing but he excels at chemistry (sorry for the brag).

They have come to see that it works. He can race ahead at what he loves and get extra time for things he struggles with, all in a nonjudgmental environment.

It is so far beyond what I could hope to find for him in a school. His joy in learning is worth all the effort.”

MARSHA IDDINGS shares her feelings about homeschooling her son Matthew:

“The most important fact that I discovered while developing Matt’s home school program is this: You, the parent, will always be your child’s greatest advocate. No other professional knows, cares, or loves your child with the depth that you do. This, more than any other factor, is important in creating a successful learning environment for the challenged child.”

Home schooling could be the best option for your child with special needs

There you go, considering the many benefits of homeschooling plus the positive results of the study done by Dr. Duvall and the awesome and positive experiences of some parents, let you be inspired to start to home school your special kid and erase your worries that you cannot  be the best teacher for your special child, but of course, he can definitely learn from you.

REMEMBER:

You as the parent who is there for your child 24/7 is the only one who knows your special child’s strengths and weaknesses to the core.

You are the only one who can offer him unconditional love and full support.

Your child feels secure with you at home, where it is the safest environment for him.

So, my dear parents, if you have the time and resources, go and home-school your special child!

You can be the best teacher for him. Ever.

 

Do you have plans of homeschooling your special child?

Or are you already homeschooling your child with special needs?

We would love to hear from you.

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Hearing impairment in children- signs and finding help

I love listening to music. It soothes my nerves. It makes me happy and want to dance.

I love talking to my family and friends. I can share with them my worries or my excitement.

I always look forward to talking with my parents back home, by phone or via messenger or face time.

I’m lucky because my sense of hearing is 100% okay.

I know most of us feel that way, too.

Our sense of hearing is really important in how we interact with others. Right?

Our world will be so quiet when we have hearing impairment or we just hear muffled sounds, perhaps. We will be missing lots of stuff around us that we’re supposed to enjoy.

 

Hearing impairment in children

 

Now, let’s talk about hearing impairment in children, what are the signs and how do we go as parents and caregivers in finding help?

CHLOE, a student who is now in high school, started kindergarten in a regular class. The teacher thought she was deaf and mute because she didn’t hear her talking at all.

Eventually after 2 years, she was moved to the Special Education ( SPED ) class in her school at age eight.

Soon after, the teacher heard her talk for the first time when she was bullied by a classmate. She was stammering and talking in phrases.

Teacher Bing started her with one-on-one lessons and eventually, she learned to talk in sentences and read on her own.

She was fitted with a hearing aid at this time, as well.

After 2 years in SPED, she was mainstreamed to Grade one and she continued to excel in school.

Last school year, she graduated with honors in Grade 9. She is a graceful dancer and an artist as well, she has a special talent in drawing. I guess all these talents were enhanced with early intervention of her hearing impairment.

Luckily for Chloe, the first teacher recognized right away the need for her to be guided and taught in the Special Education classroom so she was started on one-on-one lessons, thus she was able to catch up sooner.

Referral and assessment were also done so she was fitted with hearing aids which really boosted her learning and she was able to cope up well from then on.

 

 

“We participate in the Amazon Services LLC Associates Program, which provides a means for us to earn fees by linking to Amazon.com and affiliated sites. As an Amazon associate, I earn from qualifying purchases at no added cost to you. When you buy
you are able to help in the Special Education of kids with special needs in Romblon, Philippines.”

What are the signs of hearing impairment?

Parents need to be very observant of their kids as they grow and develop, so they can be referred and have proper evaluation in a timely manner.

Look out for these signs of hearing impairment in your kids. They may look and grow physically like normal kids but have these unusual signs.

  • Seems too quiet as a baby, does not get startled with loud sounds nor gets soothed by soft sounds
  • Sleeps soundly in a noisy room
  • Delayed language development, like no babbling at 2 months or not speaking at age 3
  • Talks in phrases and cannot express themselves well
  • Have problems with hearing soft sounds
  • Often asks you to repeat what you are saying
  • Confused where sounds are coming from or cannot identify who is talking to them
  • Poor vocabulary, cannot understand even simple words at 11 to 12 months
  • Struggles to hear when several people are talking at the same time
  • Poor social interaction. Because he cannot communicate properly, kids don’t like to play with him. No friendships are formed. They may be bullied as well.
  • Teachers might think they are mute because they hardly speak at all when they start school.
  • No response to playing music, somebody talking to them, or to any sound at all.
  • Wants the television or radio louder than usual
  • Does not understand directions

Causes of hearing impairment in children

CONGENITAL– born with hearing impairment.

  • This could be genetic, meaning, somebody in the family has it, especially one or both parents.
  • It could be one of the characteristics of a genetic syndrome, like Down syndrome.
  • Other congenital causes include maternal illnesses during pregnancy like German measles, maternal diabetes, and toxemia during pregnancy ( mother has abnormally high blood pressure )
  • When the baby is born prematurely or had birth complications like difficult delivery leading to anoxia, or lack of oxygen, they can also have hearing impairment at birth.
  • A mother’s exposure to certain drugs during pregnancy

ACQUIRED- noted after birth or while your child is growing up

  • Ear infection– usually kids with on and off otitis media or infection of the middle ear and not treated right away or not at all.
  • Trauma affecting the ears or the brain, like accidents or head injury
  • Infections like meningitis, measles, encephalitis, chicken pox, mumps, or influenza
  • Noise exposure, for example if the family lives close to a factory with very loud noise

Finding help

As parents, when you suspect something is wrong with your child or if you observe one or some of the above signs, or he is not developing like kids his age, always ask for help right away.

Just follow your instinct and schedule assessments.

Timely evaluation and proper intervention really makes a big difference. These kids have the capacity to develop and catch up when helped early on, just like Chloe mentioned above.

Evaluation of an ear doctor or otolaryngologist is vital

Assessment is the very first important step.

Ask his Pediatrician or your family doctor to refer your child to an audiologist who will assess the severity of hearing loss and who will in turn refer him to an ENT specialist or otolaryngologist for proper evaluation and further surgical management, if needed. 

Audiologist and otolaryngologist assessment are vital for hearing impaired kids

A speech language pathologist is an important part of the team as well, who measures the specific speech and language skills of your child and recommends or provides remedial programs as needed.

  • For babies, the newborn hearing screening test is a quick and painless examination and is usually done after the baby is two days old.
  • Fitting of hearing aids, if needed  is set up by the audiologist after proper evaluation.
  • Cochlear implants for eligible kids are done after evaluation of an otolaryngologist.

Watch this video about IRELAND, who in 2017, was born with profound hearing loss and had cochlear implants before her first birthday, thus her family is so excited that she will hear them sing ” Happy Birthday ” for the first time.

  • Communication or music therapy augments the hearing aid or the cochlear implants because these do not restore their hearing 100% like normal kids.
  • Special Education could be started on one-on-one lessons, like what Chloe got, as discussed above.

Teacher Law of the Romblon East Central School SPED program had 7 hearing impaired students last school year, 4 of them were already mainstreamed in the regular elementary but he still follows them up after school and 3 were still under his care.

These kids started with SPED from 6 to 10 years old, they were assessed by audiologists and fitted with hearing aids, except one. When they started school, they were unable to write nor communicate properly.

Teacher Law gradually and patiently taught them so they are now literates and able to communicate with the help of sign language.

CJ is one of the hearing impaired students who started at SPED at 6 years old, and was mainstreamed to regular elementary after 3 years.

With SPED he learned how to talk and communicate with the aid of sign language. He is now in grade 10 and coping well in regular school. He was also a dancer while in the elementary, a skill that he learned because of early intervention.

  • Family support is likewise very important. Interact with your child as much as possible, extra care like cooing more, engaging more and of course, support in all interventions. Expose him to more sounds like music and talking to him at all times.
  • Sign language is another thing that is needed for your hearing impaired child. Let him learn how to communicate with sign language to avoid frustrations. Even with hearing aids or cochlear implants, they are not able to hear clearly like normal kids so, sign language is still very helpful for them. This can be learned in school or with private lessons.

So, again I want to emphasize that observations by parents are really important for our growing special kids so, if you feel that your child has hearing loss, which could be partial or total, schedule him for assessment as soon as possible.

When diagnosed really early, interventions are started and these kids can catch up with their language development and even excel in school, like Chloe and CJ and the other kids mentioned above.

Ireland, who had cochlear implants just before her first birthday, has already shown great improvement on the way she plays and it will continue on for her to develop her language just like normal kids.

As parents and caregivers, let us all be vigilant in the growing and development of our kids.

All newborns need to be submitted for the Neonatal hearing screening test and if there is something abnormal, then they will be followed up closely or intervened at the right time. We learned this from the experience of Ireland’s parents.

Hearing impaired kids have all the right to hear our conversations, especially the voice of their parents, the soft hustle of the wind, or the music of their favorite singers, so they can dance gracefully with the beat of the music.

Let us not wait until they start school and get bullied because they sound weird when talking.

After all, our world is happier with music and open communication.

 

Do you have a child with hearing impairment? Is it congenital or acquired? How did you help your child overcome his disability? Please share your journey with us. Post your comments below.

 

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How to tell if your child has autism- look for the common signs

Each of your child’s milestones are usually met with awe by the whole family especially if this kid is the first in the family or the first ever grandchild.

Parents even excitedly record the first steps, the first crawl or the first stand-alone position.

At certain times however, parents notice something different or something not going the way it should be or not coming if it’s expected.

At the back of your mind, you maybe asking this question, ” Is my child autistic? “

You as a parent, being with your kid most of the time, is the best person to notice the earliest warning signs of autism. You see your child on a daily basis and you know your child better than anyone else and observe behaviors and peculiarities that a pediatrician, in a short visit, might not observe at all.

So, the question “how to tell if your child has autism, ” which maybe ringing in your ears on a daily basis needs to be answered fast!

What are the earliest signs of autism? 

Watch out for early warning signs and seek timely diagnosis and intervention.
Parents usually notice early signs and should seek consultation right away.

 

As early as 6 to 12 months, studies demonstrate that behavioral signs are starting to be noticed for autistic kids.

 

If your baby doesn’t do these tasks, don’t hesitate to ask his Pediatrician if something is wrong or better still see a Developmental Pediatrician for evaluation.

  • Make eye contact or look at you when you carry him or smile back at you when you smile at him
  • Reacts to his name, or to the cooing of somebody familiar
  • Follow objects with his eyes or seem interested with things around him
  • Wave goodbye, or use other gestures to communicate.
  • Make noises to get your attention
  • Initiate or respond to cuddling or reach out to be picked up
  • Follow your gestures and facial expressions
  • Play with other people or show interest and enjoyment
  • Show concern if you hurt yourself or experience discomfort

When is the best time to see a doctor to confirm your doubts?

If you spot these developmental red flags in your baby, go see your child’s pediatrician for evaluation as soon as possible.

At 6 months: No big smiles or expression of being happy

At 9 months: No imitating of sounds, smiles, or other facial expressions

At 12 months: No response to name and no babbling or “baby talk”; no imitating of gestures, such as pointing or waving bye-bye

At 16 months: No spoken words

At  24 months: No meaningful two-word phrases that are spoken on his own

The importance of early intervention

Your baby may not be diagnosed that early but at least his doctor can follow up his progress on a regular basis.

Usually, a definitive diagnosis is made only sometime on the 18th to the 24th month. This is because some kids may catch up on the 24th month with their delays.

Also, a small number of children appear to develop normally in the first 12 months, and then start to show autism symptoms between 18 and 24 months of age by going through a period of regression. They may have started to learn a few words then stop talking suddenly. Some parents even blame the vaccines given to their kids.

Studies have shown that early intensive treatment started at 18 months, if they are diagnosed at that age, may help to rewire the brain and reverse the symptoms.

There are variations though, like high-functioning children with autism aren’t diagnosed until they start school and noted not to interact well with classmates and teachers, thus are struggling socially.

The Special Education ( SPED ) program as an early intervention

Let me share with you two kids who are in the program at the Romblon East Central School where Pangga ta Ikaw is presently building a therapy area.

Specific interventions are taught in school so kids with autism learn how to focus.
Interventions such as zipping and unzipping are done to develop fine motor skills and to teach how to focus on tasks.

Fritz is a 7 year old boy who started the program  when he was five. He was classified as autism spectrum disorder at school. He had delayed language skills with words that were hard to understand, was hyperactive, with very short attention span and no eye contact.

Teacher Bing, his very dedicated mentor, started to develop his speech so now he speaks clearly but oftentimes still with unintelligible words. He can now sit still for 1 hour in school and is learning to read syllables and write and copy letters and words. His attention though is still in the works because for that 1 hour of sitting in class he needs to be  doing some manipulatives to keep him still.

This school year, the teacher plans to mainstream him in regular grade one.

On the other hand, Heleina is a 14 year old with severe autism who has been in the SPED program for 5 years, so started only at 9 years old,  but could not be mainstreamed to regular school and at present just in the  grade one curriculum.

This only shows that  early intervention is really important  for our autistic kids to develop well.

As a parent with an autistic child, what can you do to help your special kid?

Educate yourself.

A different way of seeing autism
Groundbreaking book on autism
An early start for your child with autism
Kids with autism have an amazing capacity to learn.
Children with autism can excel in school with early intervention.
Describes the Son-Rise program which is amazing!

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Click the images of the books to see the price.

 

 

 

Read a lot  and learn about autism for you to make informed decisions with regards to treatment options for your child. Always ask questions and participate in all treatment decisions.

Know your child well.

Learn what triggers your kid’s challenging or disruptive behaviors and what makes him calm and settled. What makes him stressed out or frightened? If you discover what upsets your child, you’ll be good at solving conflicts , thus preventing struggles and difficulties for him.

Love your child unconditionally and accept him no matter what.

Never compare your autistic child with a normal kid, accept him for what he is, otherwise you will always be frustrated with his development. Be happy with his accomplishments, celebrate small successes, and stop worrying about his delays.

Be positive.

Know that the future of your autistic child depends a lot on your support with his therapy. There is always help out there for him to grow and develop his abilities.

“We participate in the Amazon Services LLC Associates Program, which provides a means for us to earn fees by linking to Amazon.com and affiliated sites. As an Amazon associate, I earn from qualifying purchases at no added cost to you. When you buy, you are able to help in the Special Education of kids with special needs in Romblon, Philippines.”

Your autistic child is a gift

Remember your autistic child is not a burden even though taking care of him might be a big challenge with lots of struggles.

He will always give joy to your family especially watching him grow and develop himself.

Let him play with educational toys that will help him enjoy and relax . Calming products likewise,  will help him with meltdowns and sensory challenges.

Tangle Therapy Best Seller!Calming Ideas for Autism Pressure Vibrating Sensory Pillow Sirius vibrating massage pillow

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His innocence is a gift, his dependence on you will always give you a feeling of being his protector.

Celebrate his developments,  don’t focus on his delays.

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Join the World Autism Awareness Day

Celebrated every April 2nd , this is a special day declared by The United Nations General Assembly  that acknowledges the need to focus on the enhancement on the quality of life of those with autism so they can become productive members of society and lead full lives.

Your child and your family is one with the other families and the whole world in rejoicing during this special day.  Encourage your whole family to join and have fun!

World Autism Awareness
Every 2nd of April, the world celebrates all children with autism.

 

Do you have a child with autism or know somebody with autism spectrum disorder?
Please share your story with us. We would like to hear from you.
Post your comments below.

 

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